Genetic Interest Group
Information about this umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided. |
PiXiE
Organisation supports sufferers of Pseudoxanthoma Elasticum (PXE). Includes information about the condition and its causes, guidance on managing it, and contact details. |
The Alkaptonuria Society
Information about this genetic metabolic disorder for patients and professionals. Includes an FAQ, and a registration page for sufferers. |
The Williams Syndrome Foundation
Information for parents, carers, and professionals about a non-hereditary syndrome which can cause brain damage in varying degrees, combined with some physical side-effects. |
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