Rare Disorders Pierre Robin Syndrome | Contact a Family: Pierre Robin Syndrome | NORD - Pierre Robin Syndrome | Pierre Robin Network |
Rare Disorders Pierre Robin Syndrome | Contact a Family: Pierre Robin Syndrome | NORD - Pierre Robin Syndrome | Pierre Robin Network |
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Pierre Robin Syndrome
Chase's Story
Personal account of one child's experience of this condition. Includes photographs.
Contact a Family: Pierre Robin Syndrome
Main features of the condition and possible causes.
NORD - Pierre Robin Syndrome
Sample report, plus links to organisations. [Fee required for full report]
Pierre Robin Network
Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
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