Acute Intermittent Porphyria Forum
Information and links about Porph. Includes registration form for an email list. |
Canadian Porphyria Foundation
Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information. |
Diagnosing the Porphyrias
An article by Thomas G. DeLoughery, Associate Professor of Medicine. |
EPP
Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias. |
King George II and Porphyria
Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution. |
Me and AIP
Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment. |
Pediatric Oncall
Information on porphyrias including the various types and its management. |
Porphgroup
An e-mail group at Yahoo dealing with the metabolic disease porphyria. |
Porphyria
A look at the different types of these disease and some of their characteristics. |
Porphyria
From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome. |
Porphyria Page
A patient guide for all people with this disorder. Compiled by Professor Michael Moore. |
Porphyria: The Unknown Disease
Genetic metabolic disorder. Overview of types, testing and diagnosis, and links. |
Porphyrias: Diagnosis and Treatment
Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed. |
Prophyria in Charlottesville
An e-mail sent to Professor Huskey from a person working on a rescue squad. |
Suite 101
Offers links and articles about Porphyria. |
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