A Parent's Account of Trichoththiodystrophy
A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Contains an online journal and links to related sites. |
About Andrea’s Disease
Personal history of a girl in France. [English/French] |
Atlas of Genetics and Cytogenetics in Oncology and Haematology
Description and links. |
Foundation for Ichthyosis and Related Skin Types
Provides support, information, education and advocacy for individuals and families affected by ichthyosis. F.I.R.S.T. supports research into causes, treatments and a cure for ichthyosis. |
Hair Shaft Defects - Trichothiodystrophy
Hair and hair disease information with answers to common questions, treatment details, book reviews, web links. |
Jeans for Genes Day
Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders. |
National Library of Medicine
Trichothiodystrophy, the synonyms, a summary and a list of the major features. |
Trichothiodystrophy - Doctor Alfredo Rossi and Doctor C. Cantisani
A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers. |
Yahoo! Groups : Trichothiodystrophy
Uniting parents and individals who's loved ones have the Trichothiodystrophy Syndrome |
Yahoo! Groups : Trichothiodystrophy Family Contact
For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy. |
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