Carolina Fragile X Project A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them. |
Conquer Fragile X, Inc. Creating a virtual research center in Israel to find a cure. |
Fact Sheets for Health Professionals: Fragile X Syndrome From the Victorian Government, Australia. |
Fragile X Association of Australia Information on this disease, medical aspects, education, references, contacts and what's new in Australia |
Fragile X Association of Southern California Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation. |
Fragile X Research Foundation of Canada Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join. |
Fragile X Syndrome Single page on recognition of the condition in young children. |
Fragile X Syndrome - Diagnostic and Carrier Testing A Policy Statement from the American College of Medical Genetics. |
FRAXA Research Foundation Home Page Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's. |
Living with Fragile X One family's account of raising 3 children with Fragile X. |
Maryland Fragile X Resource Group A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources. |
Online Support Group Support group for Family's who are dealing with Fragile X Syndrome. |
Pediatric Oncal Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations. |
Queensland Fragile X Association About QFXA, news, events, links and contacts. Also information of fragile X syndrome. |
The National Fragile X Foundation Features information about the disease, its teatment, and inheritance. |
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