Cristina's Castle in the Clouds
Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder. |
DebRA Australia, Queensland Branch
Features disorder information, organization background, publications, photo gallery, and information about the NSW branch. |
DebRA Canada
Includes articles, news, and information about this genetic disorder. |
DebRA International
Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research |
DebRA of America
Offers information, news, newsletters, support, and resources. |
DebRA UK
Features organization background, information about the disorder, fundraising and research details, and news. |
EB Info World
Information, mailing list, pictures, and help for new parents. |
EB Medical Research Foundation
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information. |
International EB Forum
Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals. |
Yahoo! Groups: EBworld
Mailing list support group for parents, patients, and those interested in learning about disease. |
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