A-Z Directory of Cystic Fibrosis Resources
Biomedical directory with listings of hospitals, charities, research, and information by topic and location. |
CF Advantage
The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz |
CF Prescriber
Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease. |
Cindy's Friends
Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee. |
Clayton Bates Cystic Fibrosis Support Site
For family, friends, and other supporters to find out about the disease and offer support for Clayton. |
Cystic Fibrosis Health FactSheet
Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format |
Cystic Fibrosis I.Q. Test
Test what you know about cystic fibrosis. |
Cystic Fibrosis Links
Cystic Fibrosis Links and Information |
Cystic Fibrosis Management
Article detailing therapeutic options for co-management. |
Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family |
Cystic Fibrosis Resource Center
Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards. |
Cystic Fibrosis Resource Centre
A source of information for cystic fibrosis patients, parents, doctors and other carers. |
Cystic Fibrosis Western Australia
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support. |
CysticFibrosis.com
Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events. |
Home Page-Harminder
Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true. |
Irri Shark's Page
About the '65 roses' story. |
Jewish Genetic Diseases - Cystic Fibrosis
Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening. |
Manual for Cystic Fibrosis Patients and their Families
From the European Thematic Network for Cystic Fibrosis. In depth information in PDF. |
Medline Plus - Cystic Fibrosis
A comprehensive source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF. |
MyCysticFibrosis.com
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team. |
PulmonologyChannel
Information on cystic fibrosis. |
Pulmozyme.com
Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc. |
The Breathing Room
Guidance about the art of living with cystic fibrosis. |
The Spirit of Lo - Inspirational Book
Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child. |
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