Adolescents Psychological Complications of Chronic Illness Information from The Child Health Library of Children's Hospital of Pittsburgh. |
Bandaides and Blackboards Supports kids, teenagers and adults who are dealing with having a medical problem. Advice about teasing, what to expect in a hospital, poetry, and shared stories. |
Children and Grief Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families). |
Chronic Illness: New and Old Ideas to Care for Children Slide show by National Center of Medical Home Initiatives for Children with Special Needs explains two new options: Chronic Care Model and Medical Home Project. |
Dealing With a Health Condition Explains teenagers how to cope, to take control, deal with others. |
Living with Childhood Illness and Disability Resources page by the Center for Children with Special Needs includes handouts on safety, Disability Act, school preparation, the Internet. |
Pain and Chronic Illness in Children Short paper on the importance of pain management. |
Parental Advise on Coping with Chronic Illness of your Child Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers. |
Promoting Resilience in Youth with Chronic Conditions and their Parents Paper on family centered care, describes impact, principles, assessment, healthy family functioning. |
Shared Vision Complete article (also as PDF) on longterm needs, financial and medical planning. |
Starbright Foundation Features empowerment programs for seriously ill children. Includes chatrooms, videos, comic books, and cd-roms. |
Teenagers and Coping with Chronic Illness Tips and strategies for parents with newly diagnosed teenagers. |
The Child With a Long-Term Illness AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse. |
What is a Chronic Illness? Explains to children what their ill friend or relative experiences and what they can do themselves. |
Youth in Transition Article on transitions in youth with chronic health disorders advises their caregivers in assisting to gradual independence and self-management. |
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